**This is part 2 of Alana's scoliosis story. Please click
here to go back to part 1. Thank you to all who sent encouragement and prayers since I posted last week. They have been felt." **
I am sitting next to Alana on the table in the doctor's office when Dr. K tells us that her spine is at a 44 degree curve and she will have to wear a hard back brace until she stops growing. Dr. K explained that many girls who have curves over 50 degrees opt for an extensive back surgery that will place metal rods in her back to straighten the curve. He advised that they always want to try bracing before any kind of surgery. I hear him say that she will need to be fitted for the brace that very afternoon. John had to go back to work for an inspection, so it was just the two of us.
I remember the day I was diagnosed and my parents took me to a restaurant near Vanderbilt while I waited for my appointment to be fitted. My parent's did the best they could, but much of that day was filled with sadness and fear. There was so much unknown to us about scoliosis, braces, back surgery, etc.
As a 40 year old who is well versed in scoliosis and because I KNEW what to expect, I decided then and there, that I wanted Alana's experience to be different.
As we leave Dr. K's office, I said to Alana, "You will remember parts of this day for the rest of your life. You pick the restaurant. We are going to take silly selfies. We are going to distract ourselves for the next couple of hours until we have to go to the brace shop. Where do you want to eat?"
She sat quietly in the front seat and I hear Alana say, "I heard it's National Taco Day. Let's eat tacos!!" Good days or bad days....it's always a right day for tacos.
Alana and I do a great job bringing out the crazy in each other. I may have danced toward our table while serving her salsa. I may have talked to strangers in weird ways to keep her laughing. As a parent, I feel it is my job to validate the hard stuff, but also soften the blow to the best of my ability. I couldn't change what was happening around us, but I for sure saw it as my personal challenge to lighten the mood as we walk toward unwanted territory.
We leave Moe's and head to the brace shop. It's housed in a medical building and has a very small waiting room. The receptionist with kind eyes greets us warmly and was told we were coming. I am filling out all of the insurance paperwork while Alana is handed two pieces of paper with about 25 different colored back braces on it. The receptionist asked her to look at the papers and 'pick a color.'
"MOM!! You didn't tell me I could pick a color!! What color was yours?!"
I look up at her evenly and said, "In the olden days, they only had one color. White with white straps." She picked an 'ocean' colored brace.
The receptionist asks me questions about my brace, who my doctor was, etc. After a few minutes of talking, we came to the conclusion that we are 99% sure that Keith, the brace guy is the one who braced me as a child. He did all of Dr. Green's patients and was early in his career in the late 80's and early 90's. You could have knocked me over with a feather. He walks down the hallway with a soft smile.
He asked me if I recognized him and I replied with a twinkle in my eye, "Well, I remember a young guy fitting me for the brace." Haha. We all had a good laugh. He didn't recognize me either, so we were even. :)
In my childhood experience, they used strips of cloths and plaster of paris directly on the body to make a mold of the curve. From that mold, he made the brace that fit my specific body. I will be happy to talk to anyone in person about that experience, but I won't give any more details here. Just know that for a 6th grade modest girl, it was embarrassing and something I will never forget.
I had prepped Alana about this process over cheese dip. We both gave huge sighs of relief when Keith told us the process changed about 5 years ago. They now measure the body in many different areas, put measurements in a specialized computer program, and it tells him how to make the brace.
Prior to leaving, we book the date to pick up the brace. October 31st. It was about a 3 week wait.
Alana-you went through about every emotion imaginable in those 3 weeks. But through it all, you rested on your faith and the fact that you are not alone. Jesus and family got your back!! Literally and figuratively.
Part 3 to come.